WELCOME TO THE MSU FAMILY!
MSU is a patient-centered, volunteer nonprofit organization that leads with love, compassion and a unique understanding of the burdens Myositis brings to patients, care partners and families. In this website you will find all the resources you need to help you navigate the burden this disease places on you and your loved ones:
SUPPORT
because healing isn’t just physical, it’s emotional. It’s finding people who understand and can say, “Me too. You’re not alone.”
EDUCATION
because you deserve to understand your disease as well as your doctors do.
FINANCIAL ASSISTANCE
because MSU wants to help restore what myositis tries to take from you – security, dignity, and hope.
ADVOCACY
because you are not your disease and your voice matters
‘RIGHT NOW’ RESEARCH
because who knows what you need to improve your life better than you?
In 2026 we honor The Power of Community and the impact MSU volunteers, advocates and patient researchers are having on the lives of those affected by myositis. Come join us! Become a part of our family and volunteer here. Consider donating here.
From Emily Filmore, a founding director of MSU and Board Member Emeritus: “MSU Has my permission to use the image of my MSU logo-inspired painting with credit to me, without restraint. This includes but is not limited to website, promotional items, and sales.”
DONT MISS OUT!!!
REGISTRATION CLOSES TODAY!! APRIL 10
⏳ T-MINUS ZERO: LAST CALL FOR HUNTSVILLE!
This is it, explorers! Today, April 10th, is the absolute final day to register for the in-person 2026 Myositis Moon Walkat the U.S. Space & Rocket Center.
If you’ve been waiting for a sign to join us under the Pathfinder Shuttle on May 2nd—this is it! Once the clock strikes midnight, in-person registration officially closes so we can finalize our mission logistics.
Don’t miss out on: 🚀 Walking (or rolling!) beneath the rockets. 🤝 Meeting the Three Myositis Musketeers in person. 🏁 Being there live for the Shuttle Scuttle Scooter Race!
Secure your spot before the hatch closes: 🔗 https://2026myositismoonwalk.eventbrite.com
For more information visit: https://www.myositismoonwalk.org/
Living with myositis is hard enough. We are here to help with our Myositis Patient Financial Assistance Program. We cover certain emergency household expenses, medical bills, and mobility and assistive devices. The program is available to U.S. residents. See full details available in our help guide.
At MSU, we are patients and caregivers, too. We started with support, and with our support programs, you will find a family. Join us for myositis patient and caregiver groups, Zoom support, and rooms on Clubhouse. You are NOT alone in this journey.
We believe in the patient-centered research approach – putting the patient at the center of any collaboration with industry, academia, and government agencies to improve the quality of life of ALL affected by myositis. Learn more about the research we are involved in, the impact it can have, and how you can get involved.
Watch recordings of our expert-led myositis educational videos to learn more about the various types of myositis and other myositis-related topics and patient opportunities. New videos just added!
MSU's Pain Paper
The MSU pain article: “Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies” has been published in the prestigious journal, Rheumatology and MSU is proud to make the paper available to everyone at no cost. Share with your doctors. Myositis Pain is Real!
Myositis News and Updates
Upcoming Myositis Support & Events
Weekly Sunday Clubhouse Support
April 12 @ 7:00 pm - 9:00 pm ESTYoung Adults with Myositis – MSU YA Collective Power Hour
April 13 @ 7:00 pm - 8:00 pm ESTBreathe Easy: Myositis Lung Support Monthly Virtual Support Group
April 14 @ 7:00 pm - 9:00 pm ESTWeight Management Support for Myositis Patients
April 15 @ 7:00 pm - 8:00 pm EDTMyositis Support Gets Moving on Clubhouse
April 16 @ 1:00 pm - 2:30 pm ESTInternational Myositis Support
April 18 @ 2:00 pm - 4:00 pm ESTWeekly Sunday Clubhouse Support
April 19 @ 7:00 pm - 9:00 pm ESTMyositis Reads – A Book Club for Those with Myositis
April 20 @ 3:00 pm - 4:30 pm ESTMyositis Support Gets Moving on Clubhouse
April 23 @ 1:00 pm - 2:30 pm EST
Are you living with myositis?
There are many empowering opportunities for myositis patients. Get involved, advocate and educate, and be a part of traditional and unique patient-focused medical research, and more!
Volunteer at MSU
Tell your story – get involved in StateRare Disease Advocacy
Join support groups
Support MSU events
Donate blood and plasma for medical research
Donate to MSU
